News

  • Findings so far from CARE study into genetic factors contributing to OA/TOF

    Published: Mon, 29th March 2021, 10:48 AM Researchers from the CARE for Kids EA/TEF* Study being conducted by Columbia University have had their genetic sequencing results (from 45 families who enrolled in the pilot study) published in the European Journal for Human ... [Read more]
  • Help needed to improve training and support for parents new to gastrostomy care

    Published: Thu, 25th March 2021, 01:40 PM In 2020 TOFS helped to recruit families of children who are gastrostomy fed to work with Bethan Page (Research Fellow, Experimental Psychology, University of Oxford) in order to try and improve training and support ... [Read more]
  • TOFS AGM 2021

    Published: Thu, 25th March 2021, 12:16 PM Once again, because of Covid restrictions, this year’s Annual General Meeting for TOFS took place over Zoom at the end of March.  Hon Chairman and Trustee Duncan Jackson welcomed everyone and introduced the TOFS trustee ... [Read more]
  • Wow - what an Awareness Week!

    Published: Thu, 25th March 2021, 10:41 AM 2021 TOFS Awareness Week took place this year from 15 to 21 March and thank you to everyone who helped to spread the word about OA/TOF!  We timed this year’s Awareness Week& ... [Read more]
  • 2021 TOFS Awareness Week: 15 – 21 March

    Published: Mon, 1st March 2021, 09:40 AM A huge Thank you for all of your support in making the 2021 Awareness week such a huge success - you've been amazing. You can expect to see a full round up very soon! This year, more than ever, we feel that it is important to inc ... [Read more]
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