Questions about coronavirus and OA/TOF? Click here to read our regularly updated advice.
News
Giving Tuesday
Published: Tue, 21st April 2020, 01:14 PM
During the Covid-19 outbreak TOFS will continue to be here to support you all. We are regularly updating the Coronavirus news page on www.tofs.org.uk, where you’ll find information and advice from some of our patrons a ... [Read more]
EAT Covid-19 survey
Published: Mon, 20th April 2020, 01:31 PM
This phase of the study has now closed. We will provide further updates when it reopens.
Are you an adult TOF/parent of a TOF who has either a confirmed diagnosis or suspects they have contracted Covid-19? EAT has developed a sur ... [Read more]
The 2.6 Challenge - Get involved and help raise money for TOFS!
Published: Fri, 17th April 2020, 02:15 PM
A HUGE thanks to all who raised money for TOFS by taking part in the 2.6 Challenge! All of your fundraising efforts are greatly appreciated!
Get involved and help raise money for TOFS! It’s estimated that the ... [Read more]
To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.
Jo Wright, parent of a child born with OA/TOF
We wanted to thank you again for all the support you have given us over the phone and through your newsletter, website and online forum. We have found TOFS an invaluable resource and spread the word wherever we can about the great work you do.
Joanne and John Winspear, parents
The TOFS support group does exactly what it says on the tin! It supports. And that’s a very reassuring feeling - talking to people who have been there. You guys do a wonderful job.
Rachel Simpson, parent
During my working life as a paediatric surgeon I learned as much, if not more about TOF from parents and from TOFS meetings as I did from learned journals.
Leela Kapila, past Vice-President of the Royal College of Surgeons
When I read Chew, I’m encouraged by reading about the positive side of OA/TOF and the achievements of all the children and TOF adults. TOFS, the website, the Forum and Chew have all been a marvellous source of information and encouragement for us.
Rachel and Mark Hayes, parents
Our bumpy ride has been so much easier with TOFS; just listening to other people’s experiences and knowing someone is there.
Charlie and Lesley Cochrane, parents
Useful Links
Hospital Travel Cost
NHS scheme for help with travel costs for those who qualify
NHS 111
For when you need urgent medical advice and unable to contact your doctor
Adult TOF Facebook Group (endorsed by TOFS)
A (closed) Adult TOF Facebook Group, run by Adult TOF, Faye Baker, and endorsed by TOFS
Contact - for families with disabled children
UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260). Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
Website by Altido
Our team at TOFS is working tirelessly to bring you the latest advice regarding Coronavirus. The support and advice we provide are only possible thanks to kind donations from people like you. If you're able, please consider donating now.