Questions about coronavirus and OA/TOF? Click here to read our regularly updated advice.

News

Thank you very much to our London Marathon 2018 runners

Published: Mon, 11th June 2018, 10:10:00 AM

PIPPA JONES - having raised over £4,500 with gift aid Pippa is a star fundraiser! Pippa said she would finish even if she had to crawl. So glad it didn't come to that. A magnificent effort. Nine-year-old TOF son Isaac certainly has a star mum. Well done Pippa!

Working Hard

Winner for TOFS - Tony Crofts with almost £3,000 including gift aid. Already prolific fundraisers for TOFS, the Crofts family have done it again. At 6’4” and 18st, Firefighter Tony said he wasn’t a natural runner. Did he still think that after 26 miles of running? Thank you (again) Tony.

Well done Neil

Neil Stevens - Another winner for TOFS! Neil Stevens from Heysham near Lancaster was running for his Godson Adam Sowerby. As Adam is only a year old he's probably a bit too young to appreciate your efforts Neil but TOFS! certainly do. Thank you Neil!

Darren Strange goes the distance to raise megabucks for TOFS! What a way to celebrate your 48th birthday Darren! Your 16 year old son Jack who was born with TOF must be very proud of you. We are too. Thank you Darren.

Kevin Mayo wins for TOFS! Kevin was very kindly using his own balloted place to run for TOFS. Thanks Kevin, you're a star.

A family affair

Michelle and her husband win for TOFS. Another runner kindly using her balloted place for TOFS, we are very grateful. Thank you for a great effort Mr and Mrs Smith!

News Archive

2021
- October
- September
- August
- July
- June
- May
- April
- March
- February
- January

2020
- December
- November
- October
- September
- August
- July
- June
- May
- April
- March
- February
- January

2019

2018

2017

2016

2015

2014

2013

2012

2011

2010

2009

2008

2007

Members' Area

Quick Links

Member Feedback

To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with OA/TOF

We wanted to thank you again for all the support you have given us over the phone and through your newsletter, website and online forum. We have found TOFS an invaluable resource and spread the word wherever we can about the great work you do.

Joanne and John Winspear, parents

The TOFS support group does exactly what it says on the tin! It supports. And that’s a very reassuring feeling - talking to people who have been there. You guys do a wonderful job.

Rachel Simpson, parent

During my working life as a paediatric surgeon I learned as much, if not more about TOF from parents and from TOFS meetings as I did from learned journals.

Leela Kapila, past Vice-President of the Royal College of Surgeons

When I read Chew, I’m encouraged by reading about the positive side of OA/TOF and the achievements of all the children and TOF adults. TOFS, the website, the Forum and Chew have all been a marvellous source of information and encouragement for us.

Rachel and Mark Hayes, parents

Our bumpy ride has been so much easier with TOFS; just listening to other people’s experiences and knowing someone is there.

Charlie and Lesley Cochrane, parents

Useful Links

Hospital Travel Cost

NHS scheme for help with travel costs for those who qualify

NHS 111

For when you need urgent medical advice and unable to contact your doctor

Adult TOF Facebook Group (endorsed by TOFS)

A (closed) Adult TOF Facebook Group, run by Adult TOF, Faye Baker, and endorsed by TOFS

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.