Your Charity Lottery - New lottery to support TOFS!

Mon, 18th January 2021, 11:10 AM

Click here to play and be in with a chance to win! TOFS is delighted to have teamed up with Your Charity Lottery to give our members a chance to win one of 81 weekly prizes, whilst raising much needed funds...

Click here to

TOFS Trustee Graham Slater appointed as PPV Partner to the NHS England CRG - Specialised Surgery for Children!

Thu, 14th January 2021, 01:43 PM

We are pleased to announce that TOFS Trustee and Honorary Secretary Graham Slater has been appointed to the role of Patient and Public Voice (PPV) Partner on the Specialised Surgery for Children CRG Clinical Reference Group (CRG). This appointment is for a period of...

Click here to

New UK Rare Disease Framework Published!

Thu, 14th January 2021, 11:40 AM

The Department of Health and Social Care has published the UK Rare Diseases Framework, which replaces the  previous UK Strategy for Rare Diseases published in 2013.  The UK Rare Diseases Framework outlines 4 high-level priorities for...

Click here to


Wed, 13th January 2021, 10:40 AM

As we enter the third phase of rises in Covid-19 cases in the UK, we will continue to update this page regularly.  Advice is changing frequently so please check back often.  With the identification of a new, more rapidly spread, variant of coronavirus the RCPCH...

Click here to

Call for footage for Rare Disease Day 2021 Video!

Tue, 12th January 2021, 09:14 AM

Thank you for submitting your videos - we look forward to seeing if any of our TOF community appear in the final cut!   As part of Rare Disease Day 2021, Genetic Alliance UK are producing a video that aims to capture what it’s like living with a rare...

Click here to

It’s a New Year, and we are pleased to announce we have a new recruit to the TOFS team!

Thu, 7th January 2021, 12:09 PM

Interviews for the Volunteer and Events Co-ordinator role were held at the end of last year by telephone and Zoom, and member of TOFS, Sophie Parkins, was delighted to accept the position. Sophie will be responsible for helping TOFS fulfil its objectives in...

Click here to

Play Your
Charity Lottery

for TOFS!

Meet Lotte the TOFS Lottery Bear!

Coronavirus (COVID-19)

Please click here for helpful advice and information

OA/TOF diagnosis?

Watch this short video

Reassuring and easy to understand

New to TOFS?

We can help you

Latest Videos

2019 Conference

Get Support

Info, events ...

Join TOFS here

for free support

Leaflets and Publications


Can you help raise awareness of TOF/OA?

The TOF Book

Click to see 5 star reviews on Amazon

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
Website by Altido

Our team at TOFS is working tirelessly to bring you the latest advice regarding Coronavirus. The support and advice we provide are only possible thanks to kind donations from people like you. If you're able, please consider donating now.