Community

Please note that our forum is now read-only and has been left here for reference. Take a look at our Facebook Group if you'd like to discuss TOFS with our community.

Forum Name		Topics	Replies	Latest Post Info
Your experiences with TOF/OA
	General Forum	709	3146	new member..from nuneaton x Posted: 14/06/2017 13:55:06 Author: Cherry
	Feeding, Reflux or Dilatations	194	880	School lunch ideas..... HELP Posted: 04/03/2018 20:52:28 Author: lizjacobs
	TOF/OA Surgery	37	196	Baby daughter has a leak following surgery - advice please! Posted: 08/08/2015 05:36:32 Author: New horizon
	TOFS - Teens to Adults	45	268	scoliosis caused by surgery? Posted: 10/11/2017 12:43:45 Author: Carmel
	Psychological/Educational	33	151	Starting school Posted: 20/03/2015 13:35:03 Author: vanessamunsch

Forum Name		Topics	Replies	Latest Post Info
About TOFS
	About TOFS	3	5	Changing my address? Posted: 14/02/2016 22:55:03 Author: Codismummy
	Events and Fundraisers	31	86	Going Abroad On Holiday Posted: 10/05/2015 22:22:45 Author: Diane
	Comments on this Website	1	5	User Preferences. Posted: 25/06/2014 22:01:12 Author: Rich

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Member Feedback

To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with TOF/OA

We wanted to thank you again for all the support you have given us over the phone and through your newsletter, website and online forum. We have found TOFS an invaluable resource and spread the word wherever we can about the great work you do.

Joanne and John Winspear, parents

The TOFS support group does exactly what it says on the tin! It supports. And that’s a very reassuring feeling - talking to people who have been there. You guys do a wonderful job.

Rachel Simpson, parent

During my working life as a paediatric surgeon I learned as much, if not more about TOF from parents and from TOFS meetings as I did from learned journals.

Leela Kapila, past Vice-President of the Royal College of Surgeons

When I read Chew, I’m encouraged by reading about the positive side of TOF/OA and the achievements of all the children and TOF adults. TOFS, the website, the Forum and Chew have all been a marvellous source of information and encouragement for us.

Rachel and Mark Hayes, parents

Our bumpy ride has been so much easier with TOFS; just listening to other people’s experiences and knowing someone is there.

Charlie and Lesley Cochrane, parents

Useful Links

NHS 111

For when you need urgent medical advice and unable to contact your doctor

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.

Skiggle

an online SOS solution system for care-based essentials where members can request immediate assistance in unforeseen circumstances. For example - you are on holiday and find you have forgotten a vital piecce of equipment for your little one. This site may help to locate somebody nearby who can help

Disability Living Allowance

Find out about Disability Living Allowance here.