Welcome to the TOFS website

TOFS (Tracheo-Oesophageal Fistula Support) is a charity dedicated to improving the lives of all who were born with the TOF condition.

For nearly forty years we have been helping families through the challenges of bringing up a child with TOF/OA, VACTERL and associated conditions.

We do this by providing one-to-one support, and a range of information and resources to families. TOFS is a recognised source of information for professionals with an interest in TOF/OA. Through our Facebook group we provide a platform where parents and carers of TOF children can discuss the problems they face and gain support from each other. We recognise that for some born with TOF continue to need help and support as adults, which we endeavour to provide.

The TOFS charity also takes an active role in supporting research into the causes and implications of these conditions.

As a registered charity we receive no government funding and rely entirely on members donations, voluntary donations and other sources of charitable income to fund our activities. Read more about how we are funded.

The TOFS office is based in Nottingham. Member services are managed by three part-time members of staff.  The office is staffed Monday to Thursday from 8.30 am - 2.30pm. 

TOFS is a registered charity, no. 327735 and a limited company, no. 2202260. The financial management and strategic direction of the charity is the collective responsibility of the elected Trustees, who together make up the Council of Management. Trustees receive no remuneration. Trustees serve for three years and are eligible to stand for re-election at the end of their term. Any full Member of our charity is eligible to stand for election as a Trustee.

Member volunteers also play an important role in providing one-to-one support to parents and in supporting other activities, such as fundraising and events.

Membership of TOFS is open to:

  • parents, carers and relatives of children born with TOF/OA/VACTERL or any oesophageal condition;
  • adults born with these conditions; and
  • interested medical professionals.

Use the links below to learn more about how we are organised and how we can help

Council of Management
Office Staff
How we are Funded
Information and resources
Who We Help
Support for Parents
Support for Adult TOFs

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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