News Entry

 

  • TOFS Conference 2017: roundup and photos

  • Published: Tue, 17th October 2017, 10:26:00 AM
  • This year our TOFS Conference 2017 was held at the Holiday Inn Luton-South on Saturday, 14th October 2017, A record number of over 150 delegates listened to talks by eight leading specialists in the fields of Tracheo-Oesophageal Fistula (TOF) and Oesophageal Atresia (OA).

    Thank you so much to all our Speakers and Delegates. We hope that you all had a wonderful day.

  • We were delighted that Professor Paolo De Coppi, NIHR Professor of Paediatric Surgery, Head of Stem Cells and Regenerative Medicine Section, Developmental Biology & Cancer Programme, Consultant Paediatric Surgeon, Great Ormond Street Hospital, was MC for our morning sessions.

  • Dr Vuokko Wallace, Teaching Fellow and Clinical Psychologist, University of Bath gave a talk entitled 'Psychological impact of rare medical conditions: Supporting mental health and wellbeing of families affected by oesophageal atresia' . Dr Wallace is an adult TOF and an expert in psychological aspects of health conditions.

  • Professor Harish Vyas, Emeritus Professor PICU/Respiratory Medicine, Department PICU/Respiratory, Nottingham Children's Hospital, Nottingham University Hospitals NHS Trust gave a talk which explained 'Why TOF/OA children are prone to respiratory problems, and what can be done to keep them in good respiratory health', and gave several examples of case studies.

  • Mrs Christine McCormick, a Clinical Lead Specialist Speech/Language Therapist, (Acute Paediatric and Neonatal Dysphagia) from Royal Belfast Hospital for Sick Children, gave a talk whick was titled 'Facilitating safe, emergent oral feeding in children with TOF/OA'.

  • Mr Nick Maynard, Consultant Upper GI Surgeon and Cancer Lead Clinician for Oxford University Hospitals and contributor to the chapter "Oesophageal Problems in Adult Life" to the TOF book, gave an engaging talk 'Reflux, Barretts and other GI problems in adulthood'.

  • Mr Stefano Giuliani, Consultant Paediatric Surgeon, at Great Ormond Street Hospital's interesting talk was entitled 'Transition to adult care - ongoing research'.

  • Christine Shephard, President of TOFS,  and Sue Lewis-Jones, Trustee of TOFS, both parents of Adult TOFS, facilitated a meeting of Adult TOFS. 

  • Approximately fifteen of our Adult TOFS attended our lunchtime Adult TOF meeting.

  • Many thanks to Mr Joe Curry, a Consultant Neonatal and Paediatric Surgeon at Great Ormond Street Hospital, for being our MC for the afternoon sessions and also for his insightful chairing of our Question and Answer session.

  • Thank you to Dr Nikhil Thapar, Academic Lead for Gastroenterology, Stem Cells and Regenerative Medicine Section, UCL Great Ormond Street Institute of Child Health and Consultant Paediatric Gastroenterologist and Head of the Neurogastroenterology and Motility Unit, Great Ormond Street Hospital' for his two talks

    'Adoption of international care standards for TOF in the UK: what needs to be done' and

    'Upper GI problems in TOF/OA children'.

  • Professor Paolo De Coppi's fascinating talk was titled 'Developing an artificial oesphagus -an update'.

  • Many thanks to Professor Frédéric Gottrand, Professeur of Paediatrics, Reference Center of Congenital and Malformative Esophageal Diseases, University Hospital of Lille, France for his talk on 'Review of international efforts to pool expertise and develop guidelines relevant to OA/TOF treatment'.

  • Towards the end of the afternoon session, TOFS' trustee John Pearce updated the TOFS Conference 2017 Delegates with a summary of what TOFS is doing at the present time with his talk 'TOFS - an update'. Our fabulous fundraisers were thanked profusely.

  • We were delighted by the enthusiastic response to our online question facility 'slido', where delegates submitted almost 50 questions to the Panel. Of course, we only had limited time to answer questions on the day, but we answered as many as we could, and we will look to possibly answering the others in the future. Thank you to everybody who participated.

  • Many thanks to all members of our distinguished panel:

    Prof. Joe Curry (MC), Mr. Nick Maynard, Em. Prof. Harish Vyas, Mr. Stefano Giuliani, Prof. Paolo De Coppi, Dr. Nikhil Thapar, Prof. Frédéric Gottrand, Mrs. Christine McCormick, Dr. Vuokko Wallace.

  • TOFS Chairman, Duncan Jackson, concluded a wonderful day by thanking all our Speakers for generously giving their time to TOFS.

  • Congratulations to our Raffle Prizewinner Laura who won a magnificent suitcase of fantastic goodies from Professor Scrubbington, with a handwritten note from Professor Scrubbington himself!