supporting the families of children born unable to swallow

When I read Chew, I’m encouraged by reading about the positive side of TOF/OA and the achievements of all the children and TOF adults. TOFS, the website, the Forum and Chew have all been a marvellous source of information and encouragement for us.

Rachel and Mark Hayes, parents

TOFS events

Coping with the challenges of caring for a child with TOF/OA can be very hard work. We know from experience that sharing experiences and taking time out can make a real difference to families. That’s why a big part of what we do is bringing families together at events all over the country. These are informal fun get togethers with plenty for the children to do. We also put on a number of special one-off events.

We’re always interested in organising more events. If you’d like to meet others in your local area, let us know. You could even organise your own event - helping others in the same situation as yourself.  We welcome every idea, just get in touch!