supporting the families of children born unable to swallow

The first time TOFS put me in touch with another parent of a TOF child, it was as if a light had been switched on in a dark room. I could hardly believe that I was speaking to someone who understood the situation.

Judy Riley, TOFS volunteer

TOFS Community

Welcome to the online TOFS community. This is the place to make contact with other TOF families. We know that caring for a child with TOF can leave families tired and in need of support and advice - contact with other TOF parents can really help. On the other hand, you may wish to celebrate your achievements - whether you’re a parent or a TOF yourself!

It’s easy to sign up to join one or both our discussion boards and email lists. Our discussion boards cover all kinds of subjects - click below to take a look. Our two email lists include one for VACTERL families and the other more specifically for OA/TOF families, but you can join both! So if you want to post a question, share your experiences and simply introduce yourself, we’d love to hear from you!

Click to view the TOFS Forum