Our book “the TOF Child” is available on-line. We are currently working to improve the quality of the pictures.
It is now some 15 years since we first published “The TOFs Child”, and whilst there has been no change in the number of children being born with the TOFs condition since then so much else has changed. Our book has been an invaluable reference work for many parents of TOF children but the time has now come to revise the contents to reflect the changes in surgical procedures, new drugs, and treatments, which have occurred since the book was first written. We also want to include new chapters dealing with the transition from TOF child to TOFs adult.
We need your help. If you have any ideas on things you would like to be included in the new book which are not covered in the present edition, please let us know. We would also be interested in anything in the present book which you feel is unnecessary, or needs to be changed.
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Report of the findings from TOFS members services survey on Facebook
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A Google map pinpointing the location of TOF adults and children throughout the world.