supporting the families of children born unable to swallow

To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with TOF/OA

“THE TOF CHILD” is now available to read on-line

Our book “the TOF Child” is available on-line. We are currently working to improve the quality of the pictures.

It is now some 15 years since we first published “The TOFs Child”, and whilst there has been no change in the number of children being born with the TOFs condition since then so much else has changed. Our book has been an invaluable reference work for many parents of TOF children but the time has now come to revise the contents to reflect the changes in surgical procedures, new drugs, and treatments, which have occurred since the book was first written. We also want to include new chapters dealing with the transition from TOF child to TOFs adult.

We need your help. If you have any ideas on things you would like to be included in the new book which are not covered in the present edition, please let us know. We would also be interested in anything in the present book which you feel is unnecessary, or needs to be changed.

We will also be considering making significant changes in the format of the book, perhaps producing it as an e-book which is available online in PDF format, with the hardcopy being looseleaf in a binder. What are your thoughts? Please let us know. E-mail your thoughts to .(JavaScript must be enabled to view this email address)

 

Latest news…

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Report of the findings from TOFS members services survey on Facebook

Tea for TOFS week, Saturday 27 April to Saturday 4 May 2013

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Have a look at the Special events under the TOFS Events tab - there’s got to be something there for you!

“THE TOF CHILD” is now available to read on-line

TOFs World Map

A Google map pinpointing the location of TOF adults and children throughout the world.