supporting the families of children born unable to swallow

To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with TOF/OA

TOFS 2009 conference

The 2009 Conference will be held on Saturday 10 October in the Holiday Inn, Newcastle-on-Tyne.  In addition to sharing ideas and experiences and hearing about surgical and medical techniques and advances there will be an opportunity to get involved in informal workshops.  If there’s a subject you’d like covered or a question you’d like to put to our medical panel please email us (as soon as possible) at .(JavaScript must be enabled to view this email address)


Some comments from our last conference:
“the speakers were wonderful, the talks inspiring…”
“...it has been invaluable.  So much great information and knowledge.  We feel much more confident and equipped to deal with the road ahead”
“Excellent!  Speakers were very comprehensive and honest”
“Very informative - even after our third conference it continues to help…”


Please note that bookings may not be made electronically, and will only be accepted on the official booking form which is available from our office, tel: 0115 961 3092 or .(JavaScript must be enabled to view this email address) 
Early booking is advisable.  Bookings will not be accepted after 18 September ‘09.

Please note that some changes have been made to the original programme.  The day will run as follows:
Conference programme:
9.30   Registration and refreshments
10.00   Introduction:  Bruce Jaffray, TOFS patron    
10.15   Nissen’s Fundoplications:  Bruce Jaffray, Royal Victoria Infirmary, Newcastle upon Tyne
10.45   Refreshments
11.15   Keyhole Surgery: Amanda McCabe, Royal Hospital for Sick Children, Edinburgh
11.45   Genetics: Charles Shaw-Smith, Wellcome Trust Sanger Institute

12.30 - 1.15 Lunch for speakers and members with children
  1.15 - 2.00 Lunch

2.00pm Workshops:
                      Baby Resuscitation      
                      Feeding the ‘TOF’ child
                      Oesophageal Atresia
                      Genetics
2.30pm Workshops:
                      Teenage and Adult TOFS  
                      Financial Benefits
          VACTERL
                      Feeding the ‘TOF’ child
3.15   VACTERL and Update on TOF/OA Study: Sean Marven, Sheffield Children’s Hospital
3..45   Refreshments
4.00   Medical Forum chaired by Mr Edward Kiely, Great Ormond Street Hospital,  Bruce Jaffray, Amanda McCabe, Charles Shaw-Smith, Sean Marven,
                                                  Prof. Morice, Hull Royal Infirmary and Charlotte Buswell, Royal Victoria Infirmary
5.30   Closing Address

tofs reserves the right to make changes to the programme if circumstances dictate

CRECHE/CHILDCARE 
An OFSTED approved creche is available for children aged 7 and under.  Spaces are limited so early booking is essential.  Please note that the conference sessions and workshops may not be suitable for children.

ACCOMMODATION  
If you are planning on joining us on Friday or Saturday night, or both, please book directly with the hotel as soon as possible as rooms may be limited.  Contact Holiday Inn, Seaton Burn, Newcastle on Tyne, tel:  0871 423 4896.

CONFIRMATION 
Once we receive your booking, we will send you a confirmation and relevant information including a location map for the hotel.

CANCELLATION POLICY  
We reserve the right to charge a £20 fee for cancellations received after 30 September ‘09.

Our thanks to the Mayor of Darlington 2007-2008 whose funding has made this event possible.

Latest news…

TOFS Awareness Week     11-18 October 2010

Can you help?

Book NOW for our first-ever ADULT conference

Saturday 16 October, The Grimstock Hotel, Coleshill B46 1LJ (5 minutes from NEC, junction off M6 and M42)

TOFS - on Facebook

If you’re a TOF adult, or you have a child born with TOF, why not join our Facebook group?

Revised Memorandum and Articles of Association

Important notice for all members  

Research Study has made its first breakthrough

The American Journal of Human Genetics publish a paper submitted by TOFS patron, Dr Charles Shaw-Smith. 

A BIG thank you to all our fundraisers

Whether you’ve been running the Flora London Marathon or trekkin’ the Sahara - we’re very grateful…