See our page of support groups and families’ sites for more useful information.
You might find what you’re looking in our range of leaflets about VACTERL.
The Vater Forum
US VACTERL/VATER forum
VACTERL Network
US VACTERL/VATER forum
VATERS Association Family Network
US-based VACTERL/VATER support group
Vertebral
Scoliosis Association
The only independent support group for scoliosis in the UK
Scoliosis World
US site with information, resources and message boards.
iScoliosis
US site with resources and information.
Anal
Pull-thru network
One of the largest organisations in the world dedicated to the needs of those born with an anorectal malformation or colon disease and any of the associated diagnoses including: imperforate anus, cloaca, VACTERL, urinary incontinence, Hirschsprung’s Disease, spinal and renal anomalies.
Bowel Group for Kids
An Australian based organisation supporting the families of children with Imperforate Anus, Hirschsprung’s disease and other related gastrointestinal motility disorders.
Cardiac
Little Hearts Matter
Charity aimed at supporting families of children with a single ventricle heart condition. Source of information and direct support.
Heartline Association
For children with heart conditions and their families.
Children’s Heart Federation
Organisation made up of 22 registered charities which children with heart conditions, congenital or acquired heart disease and their families in the UK and Ireland.
Renal
National Kidney Foundation (UK)
UK charity run by kidney patients for kidney patients.
National Kidney Foundation (US)
LIMB
REACH
Charity providing support and advice for children with hand or arm deficiencies, and their parents.