supporting the families of children born unable to swallow

To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with TOF/OA

Support groups

UK

Contact a Family
UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer.

International

AFAO (Association francaise de l’atresie de l’oesophage)
French support group for OA/TOF

EA/TEF
US support group for OA/TOF

TEFVATER
US group for VACTERL

The VATER Connection
US group for VACTERL

OARA (Oesophageal Atresia Research Auxilliary)
Australian support group

KEKS
German support group for OA/TOF

VACTERL
Swedish support group for VACTERL

VOKS
Dutch support group for OA/TOF

AQAO
Oesophageal Atresia Association in Quebec

Laryngeal Cleft Support Group
European Support Group for children with Laryngeal Cleft