supporting the families of children born unable to swallow

To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with TOF/OA

Benefits and rights

Contact a Family
UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.

Department for Work and Pensions
Details of benefits and services available from the department for Work and Pensions.

entitled to...what can you claim?
Easy to use website with a free web-based calculator to help you work out your entitlements to benefits and tax credits.  Also links and advice on how to claim the various benefits.

Patient UK
Information on health, benefits and grants and links to other useful sites.