supporting the families of children born unable to swallow

To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with TOF/OA

About TOF/OA

See our page of support groups and families sites for more useful information about TOF/OA.

You might find what you’re looking for in our range of leaflets (link to leaflets section) and other resources (link to resources section) about TOF/OA.

Oesophageal Patients Association
Charity offering support and information to oesophageal cancer patients and their families.

Reflux

Living with reflux
UK Gastro-Oesophageal Reflux community support association providing support and information to families living with Gastro-Oesophageal Reflux (GOR or GER), Gastro-Oesophageal Reflux disease (GORD or GERD) and associated conditions.

Pediatric/Adolescent Gastroesophageal Reflux Association (PAGER)
US-based Pediatric/Adolescent Gastro-Oesophageal Reflux Association.

GERD Information Resource Centre
Site on Gastro-Oesophageal Reflux Disease (sponsored by AstraZeneca).

Respiratory

National Asthma Campaign
Information and advice on coping with asthma from charity, Asthma UK

Aaron’s Tracheostomy Page
US site about children with tracheostomies.