TOFS is a registered, UK-based charity dedicated to providing emotional support to families of children born with Tracheo-Oesophageal Fistula, Oesophageal Atresia and associated conditions.
Tracheo-Oesophageal Fistula (TOF) and Oesophageal Atresia (OA) are rare congenital conditions that affect one in every 3,500 babies. Learning that their child has TOF/OA can be an extremely difficult time for parents. From that first moment to sharing the everyday challenges of bringing up a child with TOF/OA, TOFS offers friendship, support and information through:
- one-to-one support from parents and relatives with experience of caring for a child with TOF/OA
- social events and activities
- our online community
- information leaflets and resources on many aspects of TOF/OA
Our membership of 1,100 includes new parents, families and health professionals. Contact us or take a look around our website to find out how we can help you.
TOFS is a registered charity, no. 327735 and a limited company, no. 2202260