My son Saxon is 13 weeks old, was diagnosed with Vacterl at birth, received a TOF repair immediately, he has also had one stretch so far and very recently had a 2nd operation called an Aortopexy (stitching the sleeve holding the trachea & aorta to the sternum).  Has anyone out there had this operation to help manage severe tracheomalacia?
13 weeks on, just out of hospital & still in shock…
Ozzie Caroline