supporting the families of children born unable to swallow

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harrys havin the nissens friday….
Posted: 27 September 2010 10:41 AM   [ Ignore ]  
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just had a phonecall from his surgeon they had a cancellation so decided to bring him in…he was goin thursday for a dilatation anyways so gotta take him thursday at 2pm for a stretch and the nissens….feelin slightly nervous and worried…he’ll be in til monday they think….was expectin it 2 b the end of october!! x

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Lilypie First Birthday tickers

Also Mummy to Ryan…01/10/2005…mummys big boy!!
and my Princess Gracie….08/07/2007….mummy loves u all lots xxxxxx

Harry was born…11/05/2010with TOF/OA and only one kidney…Mummys brave little soldier xxxx

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Posted: 27 September 2010 05:40 PM   [ Ignore ]   [ # 1 ]  
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Good luck but you wont need it!

Sophie was sat up in her bumbo chair only a few hours after her surgery and the following day was rolling around on her stomach.

Just remember that diet may need adjusting for a few months as his body adapts. He may struggle swallowing most things but this will improve.

It took sophie nearly a year to learn to burp after hers! Everyone is so different though and depends how tight the fundo is. Best thing ever though and any chest problems should soon start to reduce dramatically.

xx

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Gemma, mum to Sophie (3) born with TOF/OA, nissen fundoplication, mic-key button, now has an oral aversion thanks to reflux and also has cystic fibrosis.
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Posted: 29 September 2010 11:09 PM   [ Ignore ]   [ # 2 ]  
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thats great news you will be amazed how different he will be after.i found it like i had taken in this horrible puking baby and came home a wk latter with this lovely non puking baby and my washing dropped big time.didnt have to do 2-5 loads a day only had to do 1 ever 2-4 days it was a big shock to the system but one i loved.
all the best.
Jo

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