Well Harriet went to theatre on Monday for her 2nd fistula to be repaired. The ENT surgeon had looked down and found the hole so agreed best plan was to go through her throat and repair that way.
So Monday 2pm off she went, then at 5.45 he came to see us…
The op hadn’t gone to plan as he had had to close 3 holes!!!!!!!!

Can you believe she has had 4 fistulas… Has this been heard of before?

Anyway Harriet now in icu, paralysed and sedated. They are trying to extubate her on Thursday, so fingers crossed.

Thanks for all the well wishes

Kay, Gary and Harriet (if she could talk)
x

Good luck for thursday.

Sharon x

Good luck for Thursday.
We’ll be thinking of you.

Ali

Harriet came off the vent at 4pm and is doing great… first words were down as she wanted to walk…......... bless.
thanks for the well wishes and Sioned would love to meet up with you and Begw

thats brilliant news, as if she wanted to get down straight away, haha, see nothing can knock these tof babies, theyre all as tough as nails.

Wow….............

Harriet came home last night…......... She was that well she was discharged from intensive care.

Very unusual but they were that happy with her she didn’t need to go on a ward!

Thanks for the support
Kay & Gary

wow.. thats such good news!!

well done harriet!

Fabulous news!
The start of better times to come!

Ali (Josh’s mum)

Thanks for the kind messages and q’s. Harriet is actually doing amazingly. We’d been told see would in oxygen for up to 12 months and she’s already out of it and going back to nursery on Monday!! x

that is just so brilliant to hear, how amazing is harriet!

That ecellent news. Our TOF children are really fighters. Amy spent 3 months in intensive care at 6 months old and was not ment to surviour. She now 5 and at school.