Hello all,
I am just wondering whether anyone has a child with Tof/oa who is a little older, Oliver is now 9 and things get harder each time he has a hospital appointment, chest infection etc.
Obviously as they grow up they start to question why they are differnet, Oliver is also really embarrassed about his cough, he only likes to go out in noisy places, so that nobody looks at him. It doesn’t hold him back, he will still go out, luckily, he is just more aware.
Would just like some feedback from parents with chiildren who are of a similar age and how this affects them.
Many thanks, Cindy x
