supporting the families of children born unable to swallow

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Contact please for Adult TOF
Posted: 28 April 2009 03:17 PM   [ Ignore ]  
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One of our Adult TOF members (26 years old) has recently been diagnosed with Scoliosis of the Spine with a double curvature.  He’s keen to make contact with other Adult TOFs who have scoliosis.  Please reply to this posting if you’re interested in making contact with him or give us a buzz at the office and we’ll pass on your contact details.

Many thanks,
Diane

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Posted: 31 October 2009 08:44 PM   [ Ignore ]   [ # 1 ]  
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Hi there.
i’m a oa tof, without scoliosis but my long term partner does have a double curvature scoliosis and is due to have another operation soon. so between us we are very emapthetic to your condition. i know its not quite who you were looking for but we would be happy to talk/write if you would like to.
all the best
Paul and Esther

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Posted: 20 April 2010 02:49 AM   [ Ignore ]   [ # 2 ]  
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Hi there I’m Julie 27 with Vater tof/oa am happy to chat with others with feel free to email me my address is: .(JavaScript must be enabled to view this email address)

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