For those parnets with tofs kids in Australia a new support has start call tof2tofsupport it is thur yahoo please give it a go

Awesome Vicky, Thanks for that, will check it out. There is also another one through google groups called OARA parent Group, can be found at http://groups.google.com.au/group/oara-parent-group/about.

Jane

I have just joined the new yahoo group!

Hi everyone,
I just wanted to do a post to let you know I am in the process of setting up
a Sydney parent support group for OA/ TOF babies based around Sydney
Children’s Hospital Randwick.

The idea is set up a playgorup and have monthly meeting (where possible) and
run an email chat group.  As well as looking improving
the information the hospital provides to parents with OA/ TOF babies.

I have set up a Yahoo group - TOF2TOFsupport

Here’re the details on tof2tofsupport:
Group home page: http://au.groups.yahoo.com/group/tof2tofsupport
Group email address: .(JavaScript must be enabled to view this email address)

Please get in touch anytime,

Meredith
.(JavaScript must be enabled to view this email address)

Mum to Mia (4) and Dominic - 20 months OA/ TOF, silent reflux -
fundoplication and pyloroplasty Oct 08, medications - Omeprazole, Ranitidene
& Domperidone