We know all about the challenges and the rewards of caring for a child born with TOF/OA or VACTERL. We’ve now been a key source of information and support for parents and professionals for over thirty years. We understand that sharing concerns and questions with people who have actually been there can make all the difference. That’s why we offer:
One to one phone support
Speak to someone who’s been there. Our dedicated phone support service is staffed by parents and relatives of children born with TOF/OA. Our office staff, Diane Stephens and Jayne Allitt, can also provide support or put you in touch with someone who can help.
Family get togethers
Knowing you’re not alone can make life a whole lot easier. We’ll help you organise social events all over the country because taking time out is very important for families living with TOF/OA.
Special events
We put on special one-off events like the annual TOFS children’s party - a great opportunity for parents and children to have fun. Our biennial conference allows families to learn more about TOF/OA and VACTERL from medical and healthcare professionals.
Resources
We provide information sheets, leaflets and a book, The TOF Child, on many aspects of caring for a child with TOF/OA. This is at a pace and time to suit you - we know from experience how easy it is to worry about issues that may never affect your child.
Newsletter
Our members tell us that our newsletter, Chew, gives them encouragement and support. That’s because it’s full of news and updates from families and useful articles on topics like education, home support and resources.
Website
Join us and become part of the growing online TOFS community! Share your thoughts with other families or professionals through our discussion board, Facebook page and email lists.
Whether you’re a parent or relative of a child with TOF/OA, an adult with the condition or a professional with an interest in this area, we can offer you support and information. Why not join us today?
How to join
The easiest way is to MAKE A DONATION AND JOIN ONLINE and have all the advantages of being a member as soon as possible. When we receive your membership form and confirmation of your Justgiving donation we will activate your membership within 5 working days and post any information you have requested. You will just then need to complete the log in process on our community forum and as soon as we have verified your details you have full access to the members area of our website.
If you are UNABLE TO MAKE A DONATION at this time you must not use the online form but should DOWNLOAD THE PDF AND SUBMIT YOUR DETAILS BY POST.
(Only fields marked with an * are compulsory however we would appreciate if you would fill as much of the form as possible.)
- Online application form - membership for parents, UK and overseas
- Online application form - membership for individuals, medical professionals and organisations, UK and overseas
If you prefer to submit your details by post please print and complete the relevant PDF form below and post it, along with your donation, to our office:
- Membership for parents, UK and overseas (PDF)
- Membership for individuals, medical professionals and organisations, UK and overseas (PDF)
Or you can write, phone or email and request that a membership form to be posted to you.
Have you been a TOF member and has your membership simply elapsed? If so, there’s no need to complete any of the above forms. Just write, phone or email and request a renewal membership form