We know all about the challenges and the rewards of caring for a child born with TOF/OA or VACTERL. For 25 years we’ve been a key source of information and support for parents and professionals. We understand that sharing concerns and questions with people who have actually been there can make all the difference. That’s why we offer:
One to one phone support
Speak to someone who’s been there. Our dedicated phone support service is staffed by parents and relatives of children born with TOF/OA. Our Family Liaison Officer, Helene Torr, can also provide support or put you in touch with someone who can help.
Family get togethers
Knowing you’re not alone can make life a whole lot easier. We organise social events all over the country because taking time out is very important for families living with TOF/OA.
Special events
We put on special one-off events like the annual TOFS children’s party - a great opportunity for parents and children to have fun. Our biennial conference allows families to learn more about TOF/OA and VACTERL from medical and healthcare professionals.
Resources
We provide information sheets, leaflets and a book, The TOF Child, on many aspects of caring for a child with TOF/OA. This is at a pace and time to suit you - we know from experience how easy it is to worry about issues that may never affect your child.
Newsletter
Our members tell us that our newsletter, Chew, gives them encouragement and support. That’s because it’s full of news and updates from families and useful articles on topics like education, home support and resources.
Website
Join us and become part of the growing online TOFS community! Share your thoughts with other families or professionals through our discussion board and email lists.
Whether you’re a parent or relative of a child with TOF/OA or a professional with an interest in this area, we can offer you support and information. Why not join us today?