supporting the families of children born unable to swallow

We wanted to thank you again for all the support you have given us over the phone and through your newsletter, website and online forum.  We have found TOFS an invaluable resource and spread the word wherever we can about the great work you do.

Joanne and John Winspear, parents

Information and resources

It can be very difficult to hear that your child has TOF/OA. It’s natural to want to find out as much as possible. However we know from experience how easy it is to worry about issues that may never affect your child. We have developed information and resources on many aspects, from a simple explanation of TOF/OA to more detailed leaflets and factsheets. If you are new parent, we suggest you read our dedicated page for new parents, before going on to read our leaflets.

You can share experiences and hear about progress from other families with Chew, our quarterly newsletter for members.

Our book The TOF Child is aimed at parents and carers but is also useful for others, especially non-specialist medical professionals, like GPs or district nurses. You can buy The TOF Child direct from TOFS - it costs £9.99 to members and £14.99 to non-members (in the UK).

Click here for an order form (UK only)
Click here for details of delivery overseas and order form

Take a look at our leaflets and resources. Non-members are welcome to download the leaflets listed below (please phone the office for a hard copy) and members can access all the leaflets on offer. Find out how to join TOFS.

If you’re not sure what you’re looking for, please contact the office. We also offer one to one help to our members on specific queries. However we do not offer individual medical advice to parents and work only in a supportive role.