TOFS is a registered, UK-based charity dedicated to providing emotional support to families of children born with Tracheo-Oesophageal Fistula, Oesophageal Atresia and associated conditions.
Tracheo-Oesophageal Fistula (TOF) and Oesophageal Atresia (OA) are rare congenital conditions that affect one in every 3,500 babies. Learning that their child has TOF/OA can be an extremely difficult time for parents. From that first moment to sharing the everyday challenges of bringing up a child with TOF/OA, TOFS offers friendship, support and information through:
- one-to-one support from parents and relatives with experience of caring for a child with TOF/OA
- social events and activities
- our online community
- information leaflets and resources on many aspects of TOF/OA
Our membership of 1,100 includes new parents, families and health professionals. Contact us or take a look around our website to find out how we can help you.
TOFS is a registered charity, no. 327735 and a limited company, no. 2202260
Latest news…
Are you an Adult TOF?
Interested in attending a ‘TOFS 16+...Adulthood’ conference?
2010 AGM and party-time!
Saturday 9 May - Rosliston Forestry Centre, Swadlincote, Derbys DE12 8JX
Are you a medical professional with an interest in Oesophageal Atresia?
You may benefit from attending the first-ever International Workshop on OA to be held on 27 and 28 May 2010 in Lille, France
TOFS - on Facebook
If you’re a TOF adult, or you have a child born with TOF, why not join our Facebook group?
Revised Memorandum and Articles of Association
Important notice for all members
Research Study has made its first breakthrough
The American Journal of Human Genetics publish a paper submitted by TOFS patron, Dr Charles Shaw-Smith.