TOFS is a registered, UK-based charity dedicated to providing emotional support to families of children born with Tracheo-Oesophageal Fistula, Oesophageal Atresia and associated conditions.
Tracheo-Oesophageal Fistula (TOF) and Oesophageal Atresia (OA) are rare congenital conditions that affect one in every 3,500 babies. Learning that their child has TOF/OA can be an extremely difficult time for parents. From that first moment to sharing the everyday challenges of bringing up a child with TOF/OA, TOFS offers friendship, support and information through:
- one-to-one support from parents and relatives with experience of caring for a child with TOF/OA
- social events and activities
- our online community
- information leaflets and resources on many aspects of TOF/OA
Our membership of 1,100 includes new parents, families and health professionals. Contact us or take a look around our website to find out how we can help you.
TOFS is a registered charity, no. 327735 and a limited company, no. 2202260
Latest news…
Revised Memorandum and Articles of Association
Important notice for all members
Research Study has made its first breakthrough
The American Journal of Human Genetics publish a paper submitted by TOFS patron, Dr Charles Shaw-Smith.
A BIG thank you to all our fundraisers
Whether you’ve been running the Flora London Marathon or trekkin’ the Sahara - we’re very grateful…
TOFS 2009 conference
What would you like to see covered at our next conference? Let us know NOW.
Interested in taking part in a study of the genetics of Oesophageal Atresia?
Find out more here
Other sources of information and support
Other websites you might like to take a look at.